Congenital Disorder of Glycosylation
The question
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of including a dedicated Congenital Disorders of Glycosylation section in the UK Strategy for Rare Diseases.
Answered by Andrew Gwynne
No assessment has been made of the potential merits of including a dedicated section on congenital disorders of glycosylation in the UK Rare Diseases Framework. The framework was published in 2021, and provides a national vision for how to improve the lives of those living with rare diseases by addressing shared challenges, and does not focus on specific rare conditions.
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