Congenital Disorder of Glycosylation
The question
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of establishing a national patient register for Congenital Disorders of Glycosylation.
Answered by Andrew Gwynne
No assessment has been made of the potential merits of establishing a national patient register for congenital disorders of glycosylation. There are no plans in England for a specific registry for this condition. Metabolic patients are included in the National Disease Registration Service, which is now part of NHS England.
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