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Down Syndrome Act 2022

Asked by Andrew CooperLabourDepartment of Health and Social CareTabled Answered 30 July 2024UIN 1398

The question

To ask the Secretary of State for Health and Social Care, what progress his Department has made on producing statutory guidance under the Down Syndrome Act 2022.

Answered by Stephen Kinnock

The Department is currently considering next steps on producing the Down syndrome statutory guidance, as required under the Down Syndrome Act 2022, and further information will be provided in due course.

Officials have engaged with stakeholders to progress the development of draft guidance. This has included the establishment of an advisory group to inform the development process, and carrying out a national call for evidence and review of the evidence to gain a better understanding of the specific needs of people with Down syndrome and how these can be met by relevant authorities. The call for evidence received over 1,500 responses, including responses from people with Down syndrome, their families and carers, professionals, organisations, and stakeholder groups representing people with genetic conditions.

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