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Motor Neurone Disease: Research

Asked by Frank McNallyLabourDepartment of Health and Social CareTabled Answered 14 October 2024UIN 7043

The question

To ask the Secretary of State for Health and Social Care, what discussions he has had with his counterparts in the devolved administrations on co-operation on research funding for motor neurone disease.

Answered by Andrew Gwynne

The Department funds research into motor neurone disease (MND) via the National Institute for Health and Care Research (NIHR). Government funding for MND research includes programmes that are working collaboratively across the United Kingdom. For example, an £8 million investment into the EXPErimental medicine Route To Success in ALS (EXPERTS-ALS) by the NIHR. EXPERTS-ALS is an early phase clinical research trial which screens for drugs that have the potential to be successful in clinical trials for people with MND. Government funders have also invested £12.5 million to support the best discovery science at the UK Dementia Research Institute. Working with LifeArc, the MND Association, MND Scotland, and the My Name5s Doddie foundation, Government funders have also contributed £1.1 million to the £4.6 million MND Collaborative Partnership. Department research leads meet regularly with their counterparts in the devolved administrations to discuss research matters of common interest across the UK.

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