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Nusinersen: East Midlands

Asked by Sir John HayesConservativeDepartment of Health and Social CareTabled Answered 12 November 2024UIN 12689

The question

To ask the Secretary of State for Health and Social Care, how many NHS patients have been treated with Spinraza in (a) Lincolnshire and (b) the East Midlands since 2019.

Answered by Karin Smyth

Use of nusinersen, also known by the brand name Spinraza, is commissioned from specialist centres, and in the East Midlands the service is commissioned from Nottingham University Hospital (NUH). NUH has treated eight patients with nusinersen since 2019. No patients were treated in Lincolnshire hospitals, as there is no specialist centre there.

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