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Children: Medical Treatments

Asked by Dame Caroline DinenageConservativeDepartment of Health and Social CareTabled Answered 3 December 2024UIN 16134

The question

To ask the Secretary of State for Health and Social Care, what steps he is taking to improve treatment pathways for (a) PANS and (b) PANDAS patients.

Answered by Andrew Gwynne

The Department recognises the importance of raising awareness of rare diseases such as paediatric acute-onset neuropsychiatric syndrome (PANS) and paediatric autoimmune neuropsychiatric disorders associated with streptococcal infections (PANDAS) among healthcare professionals and improving the health and care system for people living with such conditions.

We are supportive of the progress made by PANS PANDAS UK and the PANS PANDAS Steering Group to undertake a national surveillance study, develop a clinical guideline and produce guidance for professionals, children, young people and families.

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