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Heart Diseases: Young People

Asked by Sir John HayesConservativeDepartment of Health and Social CareTabled Answered 19 December 2024UIN 19998

The question

To ask the Secretary of State for Health and Social Care, what steps he is taking to raise awareness of sudden deaths in young people due to undiagnosed heart conditions.

Answered by Andrew Gwynne

NHS England published a national service specification for Inherited Cardiac Conditions (ICC) in 2017, which defines the standards of care expected from organisations funded by NHS England. This specification covers young adults with previously undiagnosed cardiac disease. The aim of the ICC services is to improve the diagnosis, treatment, and outcome of patients with inherited cardiac conditions. NHS England is currently reviewing this service specification, working with a broad range of stakeholders as part of the review, including National Health Service clinical experts, the Association of Inherited Cardiac Conditions, Cardiomyopathy UK, Heart Valve Voice, and the British Heart Foundation.

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