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Blood Cancer: Databases

Asked by Sorcha EastwoodAllianceDepartment of Health and Social CareTabled Answered 13 January 2025UIN 22160

The question

To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of blood cancer data.

Answered by Karin Smyth

The National Disease Registration Service, through the National Cancer Registration and Analysis Services (NCRAS), collects information on how many people in England are diagnosed with or treated for cancer. Blood cancer is included as a distinct category, labelled haematological neoplasms. This creates a clinically rich data resource that is used to measure diagnosis, treatment, and outcomes for patients diagnosed with cancer. The data held by the NCRAS supports service provision and commissioning in the National Health Service, clinical audits, and public health and epidemiological research, all of which contribute to improved outcomes for those diagnosed with cancer, including those with blood cancer. The information is available at the following link:

https://www.cancerdata.nhs.uk/

National Disease Registration Service analysts attend quarterly meetings with United Kingdom and Ireland Association of Cancer Registries analysts to discuss any differences in the reporting of cancer data and how these can be made analogous. Annual performance indicators, including key performance indicators for haematology, are available at the following link:

https://ukiacr.org/kpis

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