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MRKH Syndrome: IVF

Asked by Vikki SladeLiberal DemocratDepartment of Health and Social CareTabled Answered 3 March 2025UIN 33331

The question

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of making people with Mayer-Rokitansky-Küster-Hauser syndrome automatically eligible for IVF treatment.

Answered by Karin Smyth

National Institute for Health and Care Excellence (NICE) fertility guidelines set out the best practice for the National Health Service to follow for those suffering from clinical infertility. It is for integrated care boards to make local decisions about the services for their local population, taking account of NICE guidelines.

Individuals with Mayer-Rokitansky-Küster-Hauser syndrome do not have wombs but can form their families through surrogacy arrangements, which are not currently included in NICE fertility guidelines. The collection and storage of eggs is covered by NICE fertility guidelines but currently only for those being treated for cancer. The guidelines are currently under review and expected to be published later in 2025.

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