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Rare Diseases: Research

Asked by Brian MathewLiberal DemocratDepartment of Health and Social CareTabled Answered 17 March 2025UIN 36536

The question

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to further research into rare diseases.

Answered by Ashley Dalton

The Department funds rare disease research through the National Institute for Health and Care Research (NIHR). 17 NIHR Biomedical Research Centres support research into rare diseases and the NIHR is working in partnership with the Medical Research Council to co-fund a UK Rare Disease Research Platform which brings together research teams across the United Kingdom with patients, stakeholders and technologies to deliver rare disease research with greater impact.

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