Huntington's Disease: Surrey
The question
To ask the Secretary of State for Health and Social Care, what steps he is taking to increase the availability of specialist clinical provision for people with Huntington’s Disease in Surrey.
Answered by Ashley Dalton
Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases, such as Huntington’s Disease.
Integrated care boards (ICBs) are responsible for working with their local communities to understand the needs of the local populations and make decisions about how best to commission services that meet those needs, including the treatment of Huntington’s Disease, in partnership with other local commissioners and organisations. Details on local clinical provisions are best answered by the ICB, in this case NHS Surrey Heartlands.
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