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Spinal Muscular Atrophy: Screening

Asked by Peter DowdLabourDepartment of Health and Social CareTabled Answered 1 May 2025UIN 45629

The question

To ask the Secretary of State for Health and Social Care, what discussions he has had with the National Institute for Health and Care Research on expediting the publication of its research brief to inform the UK National Screening Committee’s in-service evaluation of newborn screening for spinal muscular atrophy.

Answered by Ashley Dalton

My Rt Hon. Friend, the Secretary of State for Health and Social Care is aware of the plans being developed for the National Institute for Health and Care Research’s research call and the in-service evaluation. However, its roll out and timeline will not be confirmed until after the conclusion of the 2025 Spending Review.

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