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Rare Diseases: Health Services

Asked by Alison HumeLabourDepartment of Health and Social CareTabled Answered 5 June 2025UIN 55858

The question

To ask the Secretary of State for Health and Social Care, if he will make it his policy to renew the UK Rare Diseases Framework.

Answered by Ashley Dalton

The Government remains committed to improving the lives of people living with rare diseases and their families, and will be working with the devolved administrations this year to review what comes next following the expiry of the UK Rare Diseases Framework in 2026.

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