VerbatimParliament, as it happens

Chronic Illnesses

Asked by James NaishLabourDepartment of Health and Social CareTabled Answered 14 July 2025UIN 65928

The question

To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of NICE’s definition of a very severe condition.

Answered by Karin Smyth

The National Institute for Health and Care Excellence (NICE) introduced the severity modifier in 2022 to replace the existing end of life modifier, based on evidence of societal preferences and as part of a comprehensive review of NICE’s methods and processes. The modifier was designed through extensive public and stakeholder engagement and in line with the principle of opportunity cost neutrality. NICE’s updated methods, including the severity modifier, have enabled it to recommend a number of treatments for conditions such as hepatitis D and cystic fibrosis, that it may not otherwise have been able to recommend for use on the National Health Service. Under these new methods, the proportion of positive recommendations is higher, at 86.5%, than with the end-of-life modifier, at 82.5%.

NICE has commissioned research to gather further evidence on societal preferences that will inform future methods reviews.

Verbatim has judged this answer against the question that was actually asked — answered, partly answered, or evaded. Sign in to see the verdict →

Open this question in Verbatim →

Every written question, searchable

155,000 questions tabled since the election, with the answer each department gave — and the ones still unanswered, with the clock running. Free to search.

Search written questions →Read on Verbatim