Sickle Cell Diseases: Death
The question
To ask the Secretary of State for Health and Social Care, how many sickle cell patients have died due to complications due to sickle cell in the last 12 months.
Answered by Ashley Dalton
The Department of Health and Social Care does not hold this information. NHS England does not hold or have access to data that would accurately represent the number of sickle cell patients that have died due to complications due to sickle cell disorder (SCD) in the last 12 months
The National Disease Registration Service, part of NHS England, is expanding its rare disease collection to include patients with SCD in England. This will form a comprehensive national dataset to enable improved understanding of patient pathways for SCD, support planning and commissioning of services and improve patient outcomes.
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