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Tofersen

Asked by Stuart AndrewConservativeDepartment of Health and Social CareTabled Answered 6 November 2025UIN 78125

The question

To ask the Secretary of State for Health and Social Care, whether his Department plans to publish data on the number of patients receiving Tofersen through NHS services.

Answered by Dr Zubir Ahmed

I am aware that the marketing authorisation holder has established an early access programme (EAP) through which some NHS patients are currently accessing tofersen. This is a company-led EAP and therefore the Department nor NHS England centrally hold prospective information regarding the exact number of patients receiving tofersen.

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