Rare Diseases: Health Services
The question
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support people affected by (a) Fahr's Disease and (b) other genetic, rare and undiagnosed conditions.
Answered by Ashley Dalton
The Government is committed to improving the lives of those living with rare diseases, such as Fahr’s Disease. The United Kingdom Rare Diseases Framework sets out four priorities collaboratively developed with the rare disease community. These include: helping patients get a final diagnosis faster; increasing awareness of rare diseases among healthcare professionals; better coordination of care; and improving access to specialist care, treatments, and drugs.
We published the annual England Action Plan in February 2025, where we report on the steps we have taken to advance these priorities in the preceding year and set out three new actions for the year ahead.
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