Ehlers-Danlos Syndrome
The question
To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the information available on the NHS website for patients with Ehlers Danlos syndromes.
Answered by Ashley Dalton
The National Health Service website offers comprehensive information to the public on Ehlers-Danlos syndromes (EDS), covering the symptoms, types, diagnosis, treatment, and how it is inherited. This includes detailed descriptions for the most common type, hypermobile EDS, as well as more serious but rarer types like vascular EDS. It also links to external sources of advice, like Ehlers-Danlos Support UK and the Hypermobility Syndromes Association, to provide a wider range of detailed, expert information.
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