Rare Diseases: Mental Health Services
The question
To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential merits of integrating psychological support into care pathways for people with rare diseases.
Answered by Ashley Dalton
The Government is committed to improving the lives of those living with rare diseases and continues to make progress under the UK Rare Diseases Framework. Mental health and psychological support has featured as a focus area under England’s rare diseases action plans, the most recent of which was published in February 2025. Access to psychological support for people with rare diseases is underpinned by National Health Service service specifications. In addition, the NHS National Genomics Education Programme provides information to health care professionals, including on mental health and rare disease. This includes setting out how the mental health of rare disease patients requires assessment, and that monitoring should be an integral part of care plans, considered equally as important as physical health.
More widely, the 10-Year Health Plan sets out ambitious plans to transform mental health services to improve access and treatment, and to promote good mental health and wellbeing for the nation. This includes improving assertive outreach, investing in mental health emergency departments and neighbourhood mental health centres, and increasing access to talking therapies and evidence-based digital interventions.
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