Ehlers-Danlos Syndrome
The question
To ask the Secretary of State for Health and Social Care, what steps he is taking to increase awareness amongst (a) GPs and (b) NHS clinicians of Ehlers-Danlos Syndrome.
Answered by Ashley Dalton
A primary goal of the Complex Ehlers-Danlos Syndrome (EDS) Service, which is commissioned by NHS England, is to educate clinicians about the diagnosis, investigation, and management of patients with complex and atypical forms of EDS. While the service focuses on rare types and accepts referrals from secondary and tertiary care, its development of guidelines and educational initiatives also benefits general practitioners (GPs), who are on the front line of patient care.
Additionally, the Royal College of General Practitioners and Ehlers-Danlos Support UK have developed the EDS GP Toolkit, which is specifically designed to provide information and guidance to GPs.
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