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Congenital Abnormalities

Asked by Mr Richard HoldenConservativeDepartment of Health and Social CareTabled Answered 2 December 2025UIN 93105

The question

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 11 November 2025 to Question 87431 on Congenital Abnormalities, whether he has plans to (a) publish aggregated consanguinity statistics collected through the Maternity Services Data Set, (b) improve the completeness and reliability of those data and (c) integrate consanguinity indicators into wider national population health or genomics datasets; and whether he has reviewed options for doing so in his Department.

Answered by Dr Zubir Ahmed

NHS England has no current plans to publish aggregated consanguinity statistics collected through the Maternity Services Data Set. Through the Genetic Risk Equity project, the National Health Service is seeking to improve the quality of consanguinity data in nine pilot sites. There are no plans to integrate consanguinity indicators into wider national population health or genomics datasets.

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