Motor Neurone Disease: Fundraising
The question
To ask the Secretary of State for Health and Social Care, whether he plans to recognise and support Kevin Sinfield CBE's fundraising for motor neurone disease.
Answered by Ashley Dalton
We pay tribute to the outstanding work that Kevin Sinfield had done to raise money for motor neurone disease (MND) charities and raise awareness of the condition. It will truly make a huge difference to those living with MND and their loved ones. We welcome the recent opening of the new Rob Burrow Centre for MND in Leeds. Kevin Sinfield’s fundraising was instrumental to this centre being upbuilt.
The Government is investing in MND research across a range of areas, including an £8 million investment via the National Institute for Health and Care Research into the EXPERTS-ALS study, a pre-clinical study which is designed to accelerate the identification and testing of the most promising treatment candidates for treating amyotrophic lateral sclerosis, or ALS, the most common form of MND.
The MND Translational Accelerator, supported by £6 million of Government funding, is connecting the UK Dementia Research Institute, the UK MND Research Institute, and Dementias Platform UK. Twelve projects have been funded through the Accelerator, with all aimed at speeding up the development of treatments for MND.
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