Spinal Muscular Atrophy: Children
The question
To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support parents whose children have been diagnosed with spinal muscular atrophy.
Answered by Ashley Dalton
Planning for a large-scale trial across the National Health Service is underway, where hundreds of thousands of babies will be screened for spinal muscular atrophy (SMA) from next year to help build the evidence base needed to support a national screening programme.
My Rt. Hon. Friend, the Secretary of State for Health and Social Care, has asked the Department to look at whether this evaluation can start sooner, and whether it can be expanded to involve all babies, rather than two thirds as currently planned and will be reporting back to the SMA community on this.
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