Alzheimer's Disease: Carers
The question
To ask the Secretary of State for Health and Social Care, whether his Department plans to ensure that the (a) psychological, (b) social and (b) financial impacts of caring for someone with Alzheimer’s disease are accounted for as part of National Institute for Health and Care Excellence methods for evaluating novel treatments.
Answered by Dr Zubir Ahmed
In developing its recommendations, the National Institute for Health and Care Excellence (NICE) takes into account all health-related costs and benefits for patients and caregivers, in line with its established methods and processes.
In 2022, NICE undertook a detailed review of whether it should broaden the perspective it uses in its economic evaluations, including consideration of wider societal impacts. NICE found that robust methods for quantifying wider societal effects are not yet sufficiently developed, and that evidence on the wider societal benefits of interventions, and of the services that might be displaced, is limited. NICE has also noted that expanding assessments to capture socioeconomic impacts could introduce ethical challenges, such as advantaging interventions for populations with higher workforce participation over those for children, older adults, or people unable to work.
Following this review, and after examining both international comparisons, and the significant methodological and ethical challenges involved, NICE’s Board concluded that it should retain its current approach of using a health-sector perspective routinely but with the flexibility to include wider societal benefits when they are especially relevant.
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