NHS: Databases
The question
To ask the Secretary of State for Health and Social Care, whether (a) he, (b) Ministers and (c) officials had discussions with (i) NHS England, (ii) University of York and (iii) other researchers on the Data Linkage study in (A) November 2025, (B) December 2025 and (C) January 2026.
Answered by Karin Smyth
The data linkage study remains an important commitment and forms part of a wider national research programme underpinning the design and delivery of the new model of National Health Service care in place in England for children and young people with gender incongruence/dysphoria. No discussions were had with the University of York in November 2025, December 2025 and January 2026 about the data linkage study. The Department has, however, continued to regularly engage with and support NHS England, which has taken on responsibility for study delivery.
Important final steps are currently being taken to enable the study to begin. On 26 February, an updated order was laid in both Houses of Parliament to facilitate delivery of the data linkage study. The order will provide appropriate legal protections for those individuals and organisations who will be sharing or processing data potentially subject to the specific protections of the Gender Recognition Act 2004, for the purpose of the study. The order is expected to come in to force on 20 March 2026. Final Health Research Authority study approval will also need to be in place before the study can begin.
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