Personal Independence Payment: ME/CFS

Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS) is a medically recognised condition associated with a range of disabling effects which depend upon the severity of the condition.

All Health Professionals (HPs) receive comprehensive training in disability analysis, including how to assess the impacts of medical conditions on claimant’s day-to-day activities, as well as awareness training in a range of conditions, symptoms and disabilities. HPs have access to a wide range of Core Training and Guidance Material (CTGM). These resources offer detailed clinical and functional information, including the potential risks and limitations of a range of conditions, such as ME/CFS, to support HPs in delivering informed assessments. All core training and guidance materials are quality assured to ensure their accuracy from both a clinical and policy perspective.

In addition, the Personal Independence Payment (PIP) criteria consider an individual’s ability over a 12-month period, ensuring that fluctuations are considered. It is essential for the assessment to accurately reflect the impact of variations in an individual's level of impairment, this is important for all health conditions, not only those which more typically fluctuate. For each activity, if a descriptor applies on more than 50 per cent of the days in the 12-month period, that descriptor should be chosen. In general, HPs should record function over an average year for conditions that fluctuate over months, per week for conditions that fluctuate by the day, and by the day for conditions that vary over a day.