Ehlers-Danlos Support UK
The question
To ask the Secretary of State for Health and Social Care, if he will commit to meeting with EDS UK before the end of the year.
Answered by Mrs Sharon Hodgson
My Rt Hon. Friend, the Secretary of State for Health and Social Care, and ministers regularly meet with a wide range of stakeholders, including patient groups and charities, to inform policy development and to understand lived experience. Officials from the Department have also engaged with organisations representing people affected by Ehlers–Danlos syndromes (EDS).
While it is not possible to commit to specific meetings within a set timeframe, the Department remains open to continued engagement with EDS UK and other stakeholders as part of its ongoing work to improve care and outcomes for people living with complex and long‑term conditions.
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