Ehlers-Danlos Syndrome: Surrey Heath
The question
To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of diagnostic pathways for patients presenting with suspected (a) hypermobility spectrum disorders and (b) hypermobile Ehlers-Danlos syndromes in Surrey Heath constituency.
Answered by Mrs Sharon Hodgson
The Department recognises that timely and accurate diagnosis of hypermobility spectrum disorders (HSD) and hypermobile Ehlers‑Danlos syndrome (hEDS) is important in supporting people to access appropriate care and management, including people in Surrey Heath.
Responsibility for the planning and delivery of diagnostic pathways sits with local National Health Service integrated care boards, working with primary, community, and secondary care services to meet the needs of their populations.
The EDS GP Toolkit, which was developed by the Royal College of General Practitioners in collaboration with Ehlers-Danlos Support UK, supports the diagnosis of HSD and hEDS by providing primary care clinicians with practical, evidence‑based guidance on recognising hypermobility‑related conditions, applying established clinical diagnostic criteria, and distinguishing between HSD, hEDS, and other causes of joint hypermobility.
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